A cholesteatoma is an abnormal growth of skin cells trapped within the middle ear or mastoid bone. Despite not being cancerous, it behaves aggressively, growing progressively and eroding surrounding bone structures. Without surgical treatment, a cholesteatoma can destroy the hearing bones, damage the facial nerve, erode into the inner ear and, in rare cases, lead to serious intracranial complications.
A cholesteatoma is a sac-like pocket of keratinised (dead) skin cells that accumulates in the middle ear cleft, typically in the attic (epitympanum) or posterior-superior portion of the middle ear. The trapped skin debris cannot shed naturally, so it builds up progressively, releasing enzymes and inflammatory proteins that erode the surrounding temporal bone.
Cholesteatomas are classified as either congenital (present from birth, found behind an intact eardrum) or acquired (developing later in life, usually associated with eardrum retraction or perforation). Acquired cholesteatomas are far more common and typically arise from chronic Eustachian tube dysfunction, recurrent ear infections or eardrum retraction pockets.
Cholesteatomas often develop slowly, and symptoms may be present for months or years before diagnosis:
Any combination of persistent ear discharge with progressive hearing loss should prompt specialist assessment to exclude cholesteatoma.
The most common mechanism for acquired cholesteatoma formation involves:
At Central Sydney ENT, cholesteatoma is diagnosed through a combination of clinical assessment and imaging:
Microscopic ear examination: Using a binocular operating microscope, the ENT surgeon can visualise the eardrum in detail, identifying retraction pockets, perforations, crusting or the white pearly mass characteristic of cholesteatoma. Micro-suction may be needed to clear discharge and debris for a thorough view.
CT scan of the temporal bone: High-resolution CT scanning is the primary imaging modality, showing the extent of bone erosion and helping the surgeon plan the surgical approach. CT reveals the relationship of the cholesteatoma to critical structures including the facial nerve, inner ear and brain coverings (dura).
MRI with diffusion-weighted imaging (DWI): Increasingly used alongside CT to differentiate cholesteatoma from other tissue (such as scar or granulation), and essential for detecting residual or recurrent disease after surgery without the need for repeat surgery.
Audiometry: Hearing tests to document the type and degree of hearing loss, which helps guide surgical planning for possible hearing reconstruction.
Surgery is the only definitive treatment for cholesteatoma. The condition will not resolve with antibiotics or ear drops alone, although these may be used to manage infection before surgery.
The standard surgical procedure involves mastoidectomy (opening the mastoid bone behind the ear) combined with tympanoplasty (eardrum repair). The goals of surgery are complete removal of the cholesteatoma, creation of a safe and dry ear, eardrum reconstruction, and hearing restoration where possible.
Two main surgical approaches are used:
Surgery is performed under general anaesthesia through an incision behind the ear. The procedure typically takes two to four hours and usually requires one night in hospital. Our otology-trained surgeons, including Dr Sam Hwang, Dr Philip Yeung and Dr Arjuna Ananda, perform cholesteatoma surgery using high-powered operating microscopes.
When the cholesteatoma has eroded the hearing bones (ossicles), reconstruction may be performed during the same procedure or as a second-stage operation. This involves replacing damaged ossicles with prosthetic devices or reshaped bone to restore the sound-conducting mechanism.
You should seek a referral to an ENT specialist if:
Cholesteatoma is closely linked to several other conditions treated at Central Sydney ENT:
Ask your GP for a referral to Central Sydney ENT, or call our reception team directly.
Call (02) 9747 3199